Fighting for Hope.
Driving Awareness.
Supporting families, advancing research, and raising awareness for a rare and severe form of epilepsy caused by SCN1A gain-of-function mutations.
About Us,
Founded by parents of children diagnosed with SCN1A gain-of-function epilepsy, we are a family-led foundation dedicated to supporting others on the same journey. Our mission is to fund urgent research, raise awareness, and provide compassionate support to families affected by this rare condition.
Our Impact..
🧬 Raising Awareness 💜 Supporting Families 🔬 Advancing Research
We work to educate , advocate for accurate diagnosis, and bring public attention to SCN1A GoF.
We offer guidance, resources, and a growing community for caregivers and families navigating this rare diagnosis.
We support cutting-edge research aimed at better understanding SCN1A gain-of-function mutations and potential treatments.